Dati e ricerca genetica. Dalla tutela individuale alla gestione procedurale

Autori

  • Alessandro Bernes

DOI:

https://doi.org/10.15168/2284-4503-2310

Parole chiave:

Genetic data, GDPR, scientific research, secondary use, data sharing

Abstract

The essay focuses on the interconnections between the processing of genetic data and the goals of scientific research studies. After an analysis of the research exemptions set out by the GDPR to foster researchers' activities, which are performed by using specifically genetic data, particular attention is shown for the regulatory measures (both public and private) in order to increase data sharing and secondary use of personal data. In this sense, it is essential to move from a perspective closely related to the data subjects towards a governance model led by the data controllers and at the same time overseen by supervisory authorities and ethics committees.

##submission.downloads##

Pubblicato

2022-06-13

Come citare

1.
Bernes A. Dati e ricerca genetica. Dalla tutela individuale alla gestione procedurale. BioLaw [Internet]. 13 giugno 2022 [citato 21 giugno 2024];(1S):67-81. Available at: https://teseo.unitn.it/biolaw/article/view/2310

Fascicolo

Sezione

Saggi