Is it possible to place limits on the self-determination of your own genetic data? Certainly, and there is an urgent need for it!

Autori

  • Iñigo De Miguel Beriain
  • Daniel Jove

DOI:

https://doi.org/10.15168/2284-4503-782

Parole chiave:

DTC tests, voluntary disclosure of data, informational self-determination, collective data, data of relatives

Abstract

Voluntary disclosure of data is becoming an increasingly common practice. The problem is that these actions can seriously harm the relatives of those make such disclosures. This could happen with genetic data, which belongs to all persons about whom it provides information, regardless of who the sample donor is. What can be done in this situation? We defend the idea that they are the rights conferred by the GDPR to data subjects. On this basis, any processing of genetic data should be seen as an exercise of balancing interests, except where the need to respect professional secrecy requires otherwise.

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Pubblicato

2021-05-12

Come citare

1.
De Miguel Beriain I, Jove D. Is it possible to place limits on the self-determination of your own genetic data? Certainly, and there is an urgent need for it!. BioLaw [Internet]. 12 maggio 2021 [citato 23 giugno 2024];(1S):209-22. Available at: https://teseo.unitn.it/biolaw/article/view/1651

Fascicolo

Sezione

Troubling historical roots and contemporary challenges