Hypotheses for a participatory management of genetic biobanks understood as common goods

Authors

  • Lorenzo Marilotti

DOI:

https://doi.org/10.15168/2284-4503-2714

Keywords:

Genetic data, common goods, scientific research, solidarity, participation

Abstract

The article offers experimental hypotheses for a participatory management of genetic biobanks understood as common goods, considering the characteristics of genetic data and balancing technocratic tendencies of research with participatory instances of donors in the activity of the biobank. In particular, two models are proposed: external participation with the power of intervention and internal participation or self-management.

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Published

2023-07-20

How to Cite

1.
Marilotti L. Hypotheses for a participatory management of genetic biobanks understood as common goods. BioLaw [Internet]. 2023 Jul. 20 [cited 2024 Jul. 22];(2):383-409. Available from: https://teseo.unitn.it/biolaw/article/view/2714

Issue

No. 2 (2023)

Section

Essays

License

Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.